Portrayal Issues
Appropriate terminology
AIDS
Blind
Cleft lip
Congenital disability
Deaf
Developmental disability
Disability
Disfigurement
Down syndrome
Handicap
Head injury
Learning disability
Mental disability
Mental illness
Mental Retardation
Non-disabled
Seizure
Small/short stature
Spastic
Special
Speech disorder
Spinal cord injury
Stroke
Portrayal Issues
Please consider the following when writing about people with disabilities:
- Do not focus on a disability unless it is crucial to a story. Avoid
tear-jerking human interest stories about incurable diseases, congenital
impairments, or severe injury. Focus instead on issues that affect the
quality of life for those same individuals, such as accessible
transportation, housing, affordable health care, employment opportunities,
and discrimination.
- Do not portray successful people with disabilities as superhuman. Even
though the public may admire super achievers, portraying people with
disabilities as superstars raises false expectations that all people with
disabilities should achieve at this level.
- Do not sensationalize a disability by saying afflicted with, crippled
with, suffers from, victim of, and so on. Instead, say person who has
multiple sclerosis or man who had polio.
- Do not use generic labels for disability groups, such as "the
retarded," "the deaf." Emphasize people not labels. Say
people with mental retardation or people who are deaf
- Put people first, not their disability. Say woman with arthritis, children
who are deaf people with disabilities. This puts the focus on the
individual, not the particular functional limitation. Because of editorial
pressures to be succinct, we know it is not always possible to put people
first. If the portrayal is positive and accurate, consider the following
variations: disabled citizens, non-disabled people, wheelchair-user, deaf
girl, paralyzed child, and so on. Crippled, deformed, suffers from, victim
of, the retarded, infirm, etc. are never acceptable under any circumstances.
- Emphasize abilities not limitations. For example: uses a wheelchair,braces,
walks with crutches, rather than confined to a wheelchair, wheelchair-bound,
or is crippled. Similarly, do not use emotional descriptors such as
unfortunate, pitiful, and so forth.
Disability groups also strongly object to using euphemisms to describe
disabilities. Some blind advocates dislike partially sighted, because it
implies avoiding acceptance of blindness. Terms such as handicapable,
mentally different, physically inconvenienced, and physically challenged are
considered condescending. They reinforce the idea that disabilities cannot
be dealt with upfront.
- Do not imply disease when discussing disabilities that result from a prior
disease episode. People who had polio and experience after effects years
later have a postpolio disability. They are not currently experiencing the
disease. Do not imply disease with people whose disability has resulted from
anatomical or physiological damage (e.g., person with spina bifida or
cerebral palsy). Reference to disease associated with a disability is
acceptable only with chronic diseases, such as arthritis, Parkinson's
disease, or multiple sclerosis. People with disabilities should never be
referred to as patients or cases unless their relationship with their doctor
is under discussion.
- Show people with disabilities as active participants of society.
Portraying persons with disabilities interacting with nondisabled people in
social and work environments helps break down barriers and open lines of
communications.
Appropriate terminology
Listed below are preferred words that reflect a positive attitude in portraying
disabilities.
AIDS
Acquired immunodeficiency syndrome is an infectious disease resulting in the
loss of the body's immune system to ward off infections. The disease is caused
by the human immunodeficiency virus (HIV). A positive test for HIV can occur
without symptoms of illnesses which usually develop up to 10 years later,
including tuberculosis, recurring pneumonia, cancer, recurrent vaginal yeast
infection, intestinal ailments, chronic weakness and fever, and profound weight
loss. Preferred: people with AIDS or living with AIDS.
Blind
Describes a condition in which a person has loss of vision for ordinary life
purposes. Visually impaired is the generic term preferred by some individuals to
refer to all degrees of vision loss. Use boy who is blind, girl who is visually
impaired, or man who has low vision.
Cleft lip
Describes a specific congenital disability involving lip and gum. The term hare
lip is anatomically incorrect and stigmatizing. Use person who has a cleft lip
or has a cleft palate.
Congenital disability
Describes a disability that has existed since birth but is not necessarily
hereditary. The term birth defect is inappropriate.
Deaf
Deafness refers to a profound degree of hearing loss that prevents understanding
speech through the ear. Hearing impaired or people with hearing loss are the
generic terms preferred by some individuals to indicate any degree of hearing
loss-from mild to profound. It includes both hard of hearing and deaf. Others
prefer deaf or hard of hearing. Hard of hearing refers to a mild or severe
hearing loss that may or may not be corrected with amplification. Use woman who
is deaf, boy who is hard of hearing, or people who are hearing- impaired.
Developmental disability
Any mental and/or physical disability starting before age 22 and continuing
indefinitely. It limits one or more major life activities such as self-care,
language, learning, mobility, self-direction, independent living, and economic
self-sufficiency. Term includes individuals with mental retardation, cerebral
palsy, autism, epilepsy (and other seizure disorders), sensory impairments,
congenital disabilities, traumatic accidents, or conditions caused by disease
(polio, muscular dystrophy, etc.). May be the result of multiple disabilities.
Disability
General term used for a functional limitation that interferes with a person's
ability, for example, to walk, lift, hear, or learn. It may refer to a physical,
sensory, or mental condition. Use as a descriptive noun or adjective, such as
persons -who are mentally and physically disabled or man with a disability.
Impairment refers to loss or abnormality of an organ or body mechanism, which
may result in disability.
Disfigurement
Refers to physical changes caused by bums, trauma, disease or congenital
problems.
Down syndrome
Describes a chromosome disorder which usually causes a delay in physical,
intellectual, and language development. Usually results in mental retardation.
Mongol or mongoloid are unacceptable.
Handicap
Not a synonym for disability. Describes a condition or barrier imposed by
society, the environment, or by one's own self. Handicap can be used when citing
laws and situations but should not be used to describe a disability. Say the
stairs are a handicapfor her. (Note: Accessible parking is preferred to
"handicapped parking.")
Head injury
Describes a condition where there is temporary or long-term interruption in
brain functioning. Use persons with head injury, people who have sustained brain
damage, woman who has traumatic brain injury, or boy with an acquired head
injury.
Learning disability
Describes a permanent condition that affects the way individuals with average or
above-average intelligence take in, retain, and express information. Some groups
prefer specific learning disability, because it emphasizes that only certain
learning processes are affected. Do not say slow learner, retarded, etc. Use has
a learning disability.
Mental disability
The Federal Rehabilitation Act (Section 504) lists four categories under mental
disability: psychiatric disability, retardation, learning disability, and
(physical) head trauma. Use these four terms for specific instances; otherwise,
mental disability or cognitive impairment is acceptable.
Mental illness
Words such as crazy, maniac, lunatic, demented, and psycho are offensive and
should never be applied to people with mental health problems. Psychotic,
schizophrenic, neurotic, and other specific terms should be used only in proper
context and should be checked carefully for medical and legal accuracy.
Acceptable terms are people with emotional disorders, psychiatric illness, or
psychiatric disabilities.
Mental Retardation
Generally considered a form of developmental disability. Mental retardation
consists of significantly below average intellectual functioning with deficits
in adaptive behavior seen during the developmental period before age 18.
Preferred: people with mental retardation.
Non-disabled
Appropriate term for people without disabilities. Normal, able-bodied, healthy,
or whole are inappropriate.
Seizure
Describes an involuntary muscular contraction, a brief impairment or loss of
consciousness, etc. resulting from a neurological condition such as epilepsy or
from an acquired brain injury. Rather than epileptic, say girl with epilepsy or
boy with a seizure disorder. The term convulsion should be used only for
seizures involving contraction of the entire body.
Small/short stature
Do not refer to people under 4'10" as dwarfs or midgets. Use person of
small (or short) stature. Dwarfism is an accepted -medical term, but it should
not be used as general terminology. Some groups prefer "little
people." However, to some, that implies a less than full, adult status in
society.
Spastic
Describes a muscle with sudden abnormal and involuntary spasms. Not appropriate
for describing someone with cerebral palsy. Muscles are spastic, not people.
Special
Describes that which is different or uncommon about any person. Do not use to
describe persons with disabilities (except when citing laws or regulations).
Speech disorder
A condition in which a person has limited or difficult speech patterns. Use
child who has a speech disorder. For a person with no verbal speech capability,
use woman without speech. Do not use mute or dumb.
Spinal cord injury
Describes a condition in which there has been permanent damage to the spinal
cord. Quadriplegia denotes substantial or total loss of function in all four
extremities (some prefer tetraplegia to indicate complete paralysis of all four
extremities). Paraplegia refers to substantial or total loss of function in the
lower part of the body only. Say man with paraplegia or woman who is paralyzed
Stroke
Caused by interruption in flow of blood to brain. Hemiplegia (paralysis on one
side) may result. Stroke survivor is preferred over stroke victim.
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